Advocacy Links and Resources
Organizations as well as advocacy related books and other materials.
CPB/WGBH National Center for Accessible Media (NCAM)
A research and development facility that works to make media accessible to underserved populations such as disabled people with disabilities, minority-language users, and people with low literacy skills.
Families USA: The Voice of Health Care Consumers
A national nonprofit organization which advocates high-quality, affordable health and long term care for all Americans. Families USA works at the national, state and grassroots levels with organizations and individuals to help them participate constructively in shaping health care policies in the public and private sectors. The organization issues reports and analyses, and works extensively through a variety of media to educate the public, opinion leaders and policy makers about problems consumers experience in the health care marketplace and what should be done to solve them.
The site includes a information on many health-related advocacy resources:
- Children's Health Care Reform
- Managed Care
- Publications List
It also inlcudes latest releases such as:
- "What Is Crowd Out and Why Should Children's Health Advocates Care?" - A background paper on the possibility of the new children's health insurance program substituting for employer-based coverage (December 1997).
- Families USA gives an update on the Children's Health Insurance Program - Also included are the latest "State Allocations and Matching Rates" for the program. (December 1997).
- "Comparing Medicare HMOs: Do They Keep Their Members?" - This report provides a national picture of Medicare HMO disenrollment. (December 1997)
- "Cost-Sharing and Low-Income People" - This fact sheet explains the term "cost-sharing" and relates it to low-income Medicaid populations.
- "A Preliminary Guide to Expansion of Children's Health Coverage" - This publication provides a framework for state implementation of the provisions of the State Children's Health Insurance Program (SCHIP).
- "The Marketing and Enrollment in Medicaid Managed Care Fact Sheet" - A fact sheet that outlines challenges and offers solutions as states face the transition of Medicaid beneficiaries out of the fee-for-service program and into managed care.
- A Families USA agreement between managed care consumer advocates and nonprofit HMO's about the desirability of "legally enforceable standards" on consumer protection in managed care.
A statewide California consumer coalition of over 215 groups including religious organizations, seniors groups, organizations representing people of color, consumer advocacy groups, community organizations and unions, all united around a campaign to achieve affordable health care for all Californians.
Protection and Advocacy, Inc. (PAI)
Legal assistance to people with disabilities, including physical, developmental and psychiatric disabilities.
The Robert Wood Johnson Foundation
Based in Princeton, New Jersey, is the nation's largest philanthropy devoted exclusively to health and health care. It became a national institution in 1972 with receipt of a bequest from the industrialist whose name it bears, and has since made more than $2 billion in grants. The Foundation concentrates its grantmaking in three goal areas:
- to assure that all Americans have access to basic health care at reasonable cost
- to improve the way services are organized to provided to people with chronic health conditions
- to reduce the personal, social and economic harm caused by substance abuse--tobacco, alcohol, and illicit drugs.
- Site Information includes:
- Applying for a Grant
- Descriptions of Programs & Projects
- Search Capacity
- 1ADVANCES, the Foundation's quarterly newsletter Links to Grantee Web and Gopher sites
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